HD Insights™

Vol. 6 - Winter 2013

Issue link: http://www.e-digitaleditions.com/i/197544

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HDInsights TM A Huntington disease research periodical Issue No 6 -- Winter 2013 Research Round-Up Dr. Lise Munsie reviews the latest developments in basic, imaging, and clinical research in HD. Page 4 Meet the Compound A summary of current clinical trials with Coenzyme Q10 Page 6 Highlights from the 2013 World Congress on HD Dr. Débora Maia describes the 2013 World HD Congress, which took place in September in Rio de Janeiro, Brazil. Page 5 Status Report: Clinical Trials At a glance updates on current clinical trials in HD. Page 7 HD Research in France Isaac Adanyeguh discusses the latest imaging and biomarkers research at the Brain and Spine Institute in Paris. Page 8 Selected by Chance: An Interview with Ralf Reilmann HD INSIGHTS: Dr. Reilmann, you recently founded the George Huntington Institute in Münster, Germany. What is the vision of the Institute? REILMANN: We want to be a dynamic factor in the development and translation of approaches to treating HD.  We want to contribute to finding a cure, while providing the best possible, research-based care for patients and their relatives. We also want to foster international collaboration and friendship among HD researchers, and could potentially be a harbor for those who find it problematic to survive in their current settings doing HD research.We also want to directly connect the people in this region to our mission. The institute gives us the opportunity to educate people, including patients, about what's going on in research, and gives them the opportunity to participate in trials. With a critical mass of people working together— physicians, neuropsychologists, study nurses, researchers— it's a much more stimulating environment. Development in HD is by no means driven by any one person. It's a continual pleasure to see what collaboration and international research support can bring about, and I'm glad to be a part of it. Unfortunately, neurodegenerative diseases like HD are very badly reimbursed in the national health schemes of Germany and other European countries, and it's quite difficult to find support for HD research and care in a large hospital setting. So, the impetus for our formation was to create an infrastructure that allows us to offer Huntington's patients the optimum level of care, and (continued on Page 2...) support our research efforts. HD Insights, Vol. 6 Dr. Ralf Reilmann Photo © Gabriele Stautner, artifox.com. VITAL SIGNS CURRENT POSITION: Founding Director of the George Huntington Institut, Münster, Germany. Member, HD Insights Editorial Board. EDUCATION: MD, Westfälische WilhelmsUniversität Münster (University of Münster), Münster, Germany; Postdoctoral Research Fellowship, Columbia University, New York, NY. HOBBIES: Jogging, traveling, and discovering the world through the eyes of his seven-year-old daughter. Copyright © Huntington Study Group 2013. All rights reserved. 1

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