17
caregiver focus
cannapatientcare.com august 2021
|
cannabis patient care
ical cannabis families. Eventually, Paige and her good friend
Heather Jackson got together and created a 501c organization
called the Realm of Caring (RoC). The RoC became a great re-
source for themselves as well as countless other families.
The RoC started as a patient advocate support group that
could mentor and help people understand the best ways, the
best ratios, and the best practices to provide that efficacious
treatment. Today, RoC's mission is to "improve lives through
research, education, and community" (8). According to their
website, the RoC helps to fund and conduct research to "learn
more about cannabis and its effects while legitimizing the
therapy." The nonprofit is also involved in education efforts
and community outreach.
On April 7, 2021, the RoC held a benefit concert in honor of
Charlotte called "Rock the RoC" (9). Matt explained that Heath-
er Jackson spearheaded Rock the RoC and made this amaz-
ing event happen on the anniversary of his daughter's death.
" The idea was that we wanted to have a proper funeral ser-
vice for Charlotte, but good luck doing that in these times of
pandemic-filled COVID-19 restrictions, so we kept waiting a
few months and waiting, but nothing changed," he said. "Then
Heather, just being the angel that she is, suggested this event.
So, on the anniversary of her passing, we chose to have this
online celebration of her life. This is the first annual Rock the
RoC. Hopefully, there'll be many to come."
Governor Jared Polis of Colorado even made April 7
th
Char-
lotte Figi Day in a proclamation that went before the House
of Representatives. Matt stated that in Colorado, from here
forth, Rock the RoC will be held on Charlotte Figi Day.
The concert included many notable artists such as Jason
Mraz, Graham Nash, Glenn Phillips, The Avett Brothers, and
many more. "It's a fascinating watch because it's kind of like a
music concert, but it's constantly interspersed and interlaced
with comments from people such as Dr. Sanjay Gupta, Heath-
er, Paige, me, Joel Stanley, and many others involved with the
RoC or friends of Charlotte's," said Matt.
"We all gave our comments about this journey and what
we've learned from our trials and tribulations," said Matt. "I'm
so incredibly thankful for everyone's efforts in that regard be-
cause it finally gave us the closure we needed and provided us
the avenue to have a proper ceremony for Charlotte. Now, even
better, it's going to be a yearly event. I hope it grows because
we don't want Charlotte's impact on the world—her shining
light—to be diminished, we want it to grow. We want this move-
ment to grow. We want education and awareness to grow."
Rock the RoC is available to listen to on demand at:
https://rocktheroc.org/.
Charlotte's Legacy
It is clear to see that Charlotte Figi and her family—Matt, Paige,
Max, Chase, Greg, and Aspen—have played a major role, if not
the biggest, in normalizing CBD and medical cannabis use.
Matt said that is the most obvious thing she will be remem-
bered for. "She is the single largest ambassador and a symbol
for the success of CBD and it's efficacious treatment for many
things, especially epilepsy," he said. But in the words only
a parent could share—there is so much more to remember
about her. "Between you and me—and I guess between you,
me, and the world—there's just one single fact about Char-
lotte that only the people that truly spent time with her, in
her presence, knew: there was just no one better in the world
at making you be present. Drop your phone, put it away. Look
me in the eye and spend some time with me. Right here, right
now, be present. Man, nobody did that better than Charlotte."
In honor of Charlotte, let's all be more present with each
other and remember this brave girl and her family that have
done so much to share their CBD knowledge and experiences
to help others.
References
(1) https://www.cnn.com/2013/08/07/health/charlotte-
child-medical-marijuana/index.html.
(2) https://www.epilepsy.com/learn/types-epilepsy-syndromes/
dravet-syndrome#:~:text=Dravet%20syndrome%20is%20a%20
rare,to%20severe%20SCN1A%20gene%20mutations.
(3) https://thejaydensjuice.com/our-story/.
(4) https://www.stanleybrothers.com/.
(5) https://www.charlottesweb.com/.
(6) https://www.stanleybrothers.com/our-company/our-history.
(7) https://www.youtube.com/watch?v=wdQ2q4tWCjw.
(8) https://realmofcaring.org/about/what-we-do/.
(9) https://rocktheroc.org/.
We don't want Charlotte's impact on
the world—her shining light—to be
diminished, we want it to grow.
